Stroke Resources
This page will continue to be updated. Check back frequently, or reach out or if you're seeking specific resources.
National Resources
American Stroke Association- this site offers many educational resources regarding stroke.
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Stroke Family Warmline – a hotline that connects survivors and caregivers with an ASA team member who can provide support and resources – 1-800-4-STROKE (1-800-478-7653)
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Centers for Disease Control and Prevention- this site offers information regarding the signs and symptoms of stroke, stroke prevention, treatment of stroke and many resources.
https://www.cdc.gov/stroke/signs_symptoms.htm
Stroke Onward- Debra Meyerson and her husband Steve Zuckerman share information about stroke and rediscovering your identity post stroke.
Stroke Across America – Deb, her husband and a few others biked from ocean to ocean in 100 days completing 4,300 miles.
https://strokeonward.org/stroke-across-america-saam/
The Stroke Foundation- this site offers information regarding neuroplasticity and stroke recovery, in addition to many resources for stroke survivors and caregivers.
https://thestrokefoundation.org/neuroplasticity-and-stroke-recovery/
United Stroke Alliance – an organization dedicated to uniting and educating people about prevention, awareness, and recovery of stroke. They also run nationwide Stroke Camps.
https://unitedstrokealliance.org
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World Stroke Association- This site offers information regarding stroke education and World Stroke Day (October 29th) which is an opportunity to raise awareness of stroke.
https://www.world-stroke.org/world-stroke-day-campaign/world-stroke-day
BEFAST- this site offers information regarding the signs and symptom of stroke
Stroke Educator, Inc. - Tom Broussard shares his experience with aphasia post stroke. He has written multiple books regarding his story and to educate others regarding aphasia.
Aphasia Recovery Connection (ARC) - Non-profit organization that offers programs and support for patients and carepartners with aphasia.
https://aphasiarecoveryconnection.org/
University of Michigan Aphasia Program (UMAP) - The University of Michigan offers and intensive speech-language program. Sessions run 3-5 weeks with 25 hours of therapy each week. Some of the therapy is individual and other is group based.
University of Michigan Aphasia Program
Institute of Neurological Recovery- The INR provides perispinal etanercept treatment for patient’s poste stroke to assist with recovery of function. INR is located in Boca Raton, Florida.
https://www.strokebreakthrough.com/
Lingraphica- this site offers information about aphasia and strategies to improve communication. Also has online groups and resources for people with aphasia.
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Tedy’s Team – Raising awareness for stroke while supporting survivors on their journey.
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I Care for Your Brain - Evidence based brain health education, has a resource about stroke recovery
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Beyond Stillness: Stories After Stroke - supports stroke survivors in sharing their unique recovery story in podcast form.
https://www.beyondstillness.org/
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The Stroke Network - online stroke support and information resources
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BCenter Beyond Stroke - wellness resource for stroke recovery, includes stories, therapies, and motivation from a stroke survivor
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Champion the Challenges - website containing stories of survivors, informational booklets, rehab modalities, etc.
https://www.championthechallenges.org/
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Survivors 4 Survivors - organization that envisions a world where stroke survivors, caregivers, family and friends have the resources necessary to lead a full and meaningful life.
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Stroke OT - offers virtual and in-person groups that focus on health, exercise, and lifestyle education to advance stroke recovery.
Vermont Resources
UVM Medical Center Stroke Center-
https://www.uvmhealth.org/medcenter/conditions-and-treatments/stroke-care
UVM Medical Center Stroke Support Group- meets the first Tuesday of each month from 4-5 pm via Zoom.
Contact Becky Louko for more information at 802-847-0142 or Rebecca.louko@uvmhealth.org
Vermont Assistive Technology Program allows Vermont residents to trial Assistive Technology (creative tools and strategies that help people accomplish tasks at home, school, work and in the community) at an AT Tryout Center or in their home.
https://atp.vermont.gov/services
Vermont Center for Independent Living (VCIL) supports the rights of individuals with disabilities to live with dignity in their own homes, fully participate in their communities and to make decisions about their own lives.
HireAbility VT (formerly VocRehab) - Employment Services helps Vermonters with disabilities gain and maintain meaningful employment.
https://www.hireabilityvt.com/
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Age Well provides a wide array of programs to enhance quality of life and improve health outcomes.
Post- Stroke Communication Group at UVM- this is a communication group run by student speech language pathologists at UVM for people with aphasia
Contact Sharon Cote at (802) 656-3861
Aphasia Choir- this group of people with aphasia meet in the spring for several weeks to prepare for a singing performance in June.
Contact Karen McFeeters Leary at (802) 864-7223 or kmcfeeters@aol.com
Project Independence- this is an adult day program offered in Middlebury
https://elderlyservices.org/project-independence/
Vermont Health Care Advocate Helpline- this is a free resource to all Vermonter to assist with problems related to health care. They can be reached at (800) 917-7787 or via their website.
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Caregiver Support Groups
Just Ask RI – Stands for Aphasia, Stroke, Knowledge. An organization out of Rhode Island that offers resources and also hosts a virtual carepartner support group
https://www.justaskri.com/aphasia-events
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Stroke Awareness Oregon
https://strokeawarenessoregon.org/support-groups/
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Stroke Podcasts
Beyond Stillness: Stories after Stroke
Strokecast
Stroke Stories
Hand in Hand
The Slow Road to Better
Life After Stroke
Recovery after Stroke
https://www.podchaser.com/lists/stroke-related-podcasts-107ZztKasY
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Stroke Warrior Radio - Internet cloud based radio station. Providing new tools for motivation, education, and support to stroke survivors and their families that help navigate through the recovery process.